This weekend my Granny and Papa came for a little pre-Christmas visit. Mom took some pictures of us playing with my Nativity set and doing our exercises/stretches on the floor. Enjoy!
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About Me
- Isaac
- I am 5 years old and I live with my Mom & Dad (Amanda & Kevin), who love me very much. When I was still in my mom's tummy, the doctors saw on an ultrasound that the ventricles in my brain were bigger than they were supposed to be and that I have a condition called hydrocephalus. Given the fact that my thumbs were clasped when I was born, and that this showed up once before in my mom's family, they thought it might be genetic. Sure enough, the test they did said I do have genetic hydrocephalus, AKA: x-linked hydrocephalus, L1 syndrome, L1CAM, CRASH syndrome, and maybe other names I haven't heard yet. This affects how the nerves in my brain and my body talk to each other, and that's why I have to work really hard at physical stuff like sitting on my own, and mental stuff like communicating. It doesn't stop me from smiling, being truly joyful & loving life, nor does it stop me from loving my parents and those close to me so much, and in turn, stealing their hearts completely.
1 comment:
I love the first picture. It looks like they have a lot of fun together.
Diane, Tyler's mom
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