Hiya!
I've got a lot of catching up to do since Easter! I hope you like the Photobucket album we posted! Me and mom are still trying to figure out the whole blogging/posting/pictures buisness... Dad's more of the IT guy in the house... but we're trying!
As you might have guessed from the pictures, I got a new stander... and it's mine to keep! A guy called "The Charmer" dropped it off the other day and after some minor modifications, it's all mine!!! I stand in it every day or every other day for 20 minutes or more... depending on how long the folks can keep me entertained in there. Mom said we're gonna bring it to preschool to stand at the easel when I paint... sounds like fun... or turning fun into work... we'll see!
On Thursday we are going to see the doctor who put in my shunt... the neurosurgeon... for a check up... I'll let y'all know how it goes! Have a great rest of the week!
About Me
- Isaac
- I am 5 years old and I live with my Mom & Dad (Amanda & Kevin), who love me very much. When I was still in my mom's tummy, the doctors saw on an ultrasound that the ventricles in my brain were bigger than they were supposed to be and that I have a condition called hydrocephalus. Given the fact that my thumbs were clasped when I was born, and that this showed up once before in my mom's family, they thought it might be genetic. Sure enough, the test they did said I do have genetic hydrocephalus, AKA: x-linked hydrocephalus, L1 syndrome, L1CAM, CRASH syndrome, and maybe other names I haven't heard yet. This affects how the nerves in my brain and my body talk to each other, and that's why I have to work really hard at physical stuff like sitting on my own, and mental stuff like communicating. It doesn't stop me from smiling, being truly joyful & loving life, nor does it stop me from loving my parents and those close to me so much, and in turn, stealing their hearts completely.
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