My mom has heard a lot about blogging lately and saw a great blog by a friend who shares the same diagnosis as me, and she thought a blog would be a great way of updating friends and family about new and exciting things in my life!
We wll try our best to keep it up to date and interesting... can't make promises, but I do keep Mom and Dad on their toes and always guessing! They really get excited when I do new things and this way they can share those milestones with people who love me, instead of using email and phone calls, and there'll be less forgetting to mention my news to some people, too!
I hope this works and that you enjoy! Feel free to comment!
Isaac
About Me
- Isaac
- I am 5 years old and I live with my Mom & Dad (Amanda & Kevin), who love me very much. When I was still in my mom's tummy, the doctors saw on an ultrasound that the ventricles in my brain were bigger than they were supposed to be and that I have a condition called hydrocephalus. Given the fact that my thumbs were clasped when I was born, and that this showed up once before in my mom's family, they thought it might be genetic. Sure enough, the test they did said I do have genetic hydrocephalus, AKA: x-linked hydrocephalus, L1 syndrome, L1CAM, CRASH syndrome, and maybe other names I haven't heard yet. This affects how the nerves in my brain and my body talk to each other, and that's why I have to work really hard at physical stuff like sitting on my own, and mental stuff like communicating. It doesn't stop me from smiling, being truly joyful & loving life, nor does it stop me from loving my parents and those close to me so much, and in turn, stealing their hearts completely.
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